An Autistic Announcement

Many people who know me well already know this because I’ve been increasingly open about it, but I want to make a general, public post about autism so here goes.

Around two years ago I received an autism diagnosis. For those who are surprised, please read this.

Knowing I’m autistic is not a bad thing. In fact, this is the single most helpful thing I’ve ever learned about myself. There will be many links in this post if you also want more information.

You may want to read Nick Walker’s What is autism? to start with. Here’s an introduction geared towards a newly diagnosed child if you would prefer a simpler explanation in very clear language.

Being autistic explains my life. Every struggle, every confused moment, everything. I’m not interested in rehashing my history so you’ll just have to trust me about this. The diagnostic process took months and involved a thorough and harrowing look into my past and then-present struggles.

I’m going to make a list for the rest of the post. These are some important things to know if you care about me, especially as April “Autism Bewareness” Month approaches:

  • I use identity-first language. I’m autistic. I don’t “have” or “live with” autism. If you want to learn more, this post looks at the significance of language choice and has links to commentary on all sides of the person-first vs identity-first debate. This brief post (with a nifty comic to illustrate the point) effectively sums up my thoughts about the issue.
  • I struggle a great deal with communicating clearly in person even when I seem to be communicating just fine. If you’re not sure what I mean, please ask for clarification rather than making assumptions. I may need a moment or two to process what you’re saying, especially if you say something unexpected. I may then need another moment or two (or even years, in extreme cases) in order to figure out how to turn my response into words. Sometimes I can’t talk effectively or at all and this may cut a conversation short. I almost always prefer conversing via text (online, email, etc) rather than via spoken word.
  • I often get overwhelmed very quickly when socializing and/or in a situation with a lot of sensory input and it can take me a while to respond to texts, emails, and private messages. I’m also terrible about getting together with people in person. Please don’t take such delays personally.
  • I’m not interested in having anything to do with puzzle pieces, lighting it up blue, Autism $peaks, or ABA. I don’t particularly want to be tagged in or sent posts about those things either, especially in April when that rhetoric is unavoidable to begin with.
  • I do not use functioning labels (such as “high functioning” and “low functioning”) because I’ve found they are not helpful, can be harmful, and aren’t accurate anyhow. Some days are easier for me than others and if you see me out and about then it’s probably a pretty decent day.
  • If you have an autistic child or think you may be autistic yourself and want help sifting through the available information, please contact me privately. I’m usually happy to send you specific links and/or chat with you about your situation as I feel able. I’ve read/saved hundreds of links, have read dozens of books relating to autism (mostly from other autistic perspectives), and I love sharing autism information with people who are sincerely interested in learning more.
  • I’d rather you directly ask me questions about autism than use google because most top google sources are written by non-autistic people and often don’t accurately reflect the experiences of #ActuallyAutistic people. I co-founded a local autistic advocacy/support group and post autism information regularly on the group’s Facebook page, which you can follow, if you’d like.

Thank you for reading ❤

~B.

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